My Mickey update: he has acid reflux. So, now he just takes 6 Pepcid a day and hopefully we will see less and less coughing. I had readied myself for the worse. I had it in my worried mind that he had lung cancer or congestive heart failure. I have more time with him…woohoo!
Excuse the goober in his eye. He was born with chronic dry eye. That has basically been the only health issue he’s had. My vet calls him a unicorn because he’s never had ear issues (which apparently is surprising for a lab).
Thank you for reading and hope you’re all well❤️❤️❤️
So, I had my brain MRI this past Tuesday and the results are: no abnormalities found.
I had my PET scan yesterday (Thursday) and the results are: still stable.
I am incredibly happy. I am 17 months stable on Crizotinib. I hope it continues it’s magic!!
So, after hearing the results, I did a thing. I rode my mountain bike 5 miles. I thought I was going to die. My hip didn’t hurt at all, but my endurance sucks. My heart rate was way too high during the ride. Here’s the thing, since diagnosis, I have not really done any exercise.
Before diagnosis, I weighed 140#, I rode my bike over 100miles a week and I took two exercise classes a week. I also was careful about what I ate. The first quarter after diagnosis, I weighed 119# (Keytruda did NOT like me at all). Since being on Crizotinib since April, I now weigh 175#. I can not believe it. I realize that I need to stop eating all that I’m eating and get exercising more. I’m quite embarrassed.
That’s all the news I have for now. Hope everyone is doing well♥️♥️
I posted this on my Facebook group as well, so someone might be seeing this twice. I just want to put this where I can get to it quickly.
So, for the past two weeks, I’ve had some pain along with a bump inside my nose. I’ve had pimples inside my nose before; however, they usually resolved in 2-3 days. This one has been lasting 2 weeks, which made me look up the symptoms which brought me to this. It doesn’t specifically say “Crizotinib’, so I’m assuming that this could possibly be a side effect of it. I’m going to give it another few days before I call my PCP. Just found this interesting.
Well,I have my brain MRI on Tuesday and my PET scan on Thursday. I’m normally not worried, but I am this time. I’ve been stable for 16 months. Crizotinib has been working great, but I’m well aware that my cancer can change.
I’ve been having some pain in my kidney area. It started about two weeks ago. I’m hoping that it’s nothing. Maybe it’s pain from my lopsidedness, due to my partial hip replacement. Maybe it’s a kidney stone. Of course, my mind goes directly to the worst case scenario.
I despise MRIs. Last time I had one, I didn’t take any anti-anxiety meds. I literally thought I was going to die. I’m calling my doctor tomorrow to see if they can give me a couple of Ativan. I have no problem with the PET scans.
Change of subject, but just as anxiety causing. My pup, Mickey, has some extreme coughing. He’s about 12-13 years old, so I know his time is coming. I’m not ready.
So, if you all could send me some good juju, karma or prayers, I’d appreciate it. You all are in my thoughts and thank you for reading.❤️❤️
What a fantastic weekend!! First of all, I absolutely love road trips with my husband. It gives us alone time to talk…no interruptions by dogs, brother or phone. We drove 6 hours the first night and got to Hermitage, PA. We got there late, but the following morning we drove through the Avenue of 444 Flags. This is basically a cemetery with a ton of flags on their driveway. Most of these flags were monuments for loved ones. Great place to take photos, but only when it’s windy. Alas, there was no wind, so we didn’t take any pictures.
We then drove another two hours to Mid-Ohio Sports Car Track for the IMSA race. Husband wanted to go to this because it was supposed to be Porshe’s last race in IMSA. Unfortunately, there team in the UK had come down with Covid 19, so no Porshe’s. 😞. We stayed at the track and watched practice.
Then we went to our Hotel…Nationwide Conference and Hotel. We discovered this place years ago. One of my husband’s nieces got married there. If you’re ever near Dublin, Ohio, I suggest you look into staying here. It’s beautiful.
Went back to the track Saturday and Sunday. I noticed Saturday night that I got a little burnt…so, I lathered on the Suntan Lotion, but it didn’t help. I don’t tan, I burn. The tops of my ears hurt like hell! The weather was absolutely beautiful though!
I’m happy because I walked about 3 miles every day. It wasn’t bad, but I was out of breath. I am so out of shape. I don’t think it’s just the lung cancer. I’ve gained a lot of weight since last year. I keep saying I’m doing it to be ready for chemo (if I end up having to get that).
I have some good pain in my kidney area. Not sure what that’s from, I’m hoping I’m still stable. I’m a little concerned. I do get another PET scan on October 8th, so I will know then. I still have to make an appointment for an MRI.
Well, thank you for reading. I may add more as I remember things. Thinking of you and hope you’re doing well.♥️♥️♥️
PS: that debate between Trump and Biden was an absolute ShitShow! That’s all the political words I’m going to say.
What’s been happening with me over the last few weeks? Meh, not much. Husband still hasn’t found a job (he can’t even get an interview) Wondering if it’s due to Covid or due to his 1 year gap on his resume. I told him to somehow mention that he was taking care of me. We are getting extremely worried.
We can’t really catch a break either. My husband went to the dentist and they told him that he should have his teeth pulled and get dentures. Husband is incredibly bummed.
In other news, these are delicious! Horrible picture, but you get it. Yes, it has alcohol in it.
We are scheduled for a road trip next Thursday to Ohio. Looking forward to it. We are going to watch IMSA racing. They’re limiting the amount of people, so hopefully we will stay safe.
Otherwise, my hip is sore on occasion. I have a PET scan and brain MRI in October. Trying to stay positive, but my back has been hurting.
Thinking of you and hope you are all doing well.❤️❤️❤️
Since I was diagnosed, I’ve had a hard time sleeping. In the beginning, it was pure nerves about how long I had to live, what was treatment going to be like, and who I was going to miss.
I had a period of time last year, where I was in so much pain and was on so many drugs, I thought for sure I was going to die. However, the drugs forced me to sleep.
Now, I lie awake in bed because I’m afraid I’m going to miss something. Whether that something in on Facebook, Twitter or here. I also stay awake because I’ve recently been having strange dreams. Most have been about my past. They seem so real. Most are happy times, but some are pure horror.
I have no idea why this is happening and I refuse to ask the doctor for sleeping pills. I’m already on anti-depressants and anti-anxiety. I really don’t want to be on something else.
Anyway, I hope to write my dreams down and see if I can figure out what they mean. Stay tuned!!
So, my hubby and I went to Williams Grove Speedway. Surprisingly, it was open – no one checking temperatures, no one checking for masks, nothing. I was concerned but knew I might be okay as long as I had my mask on and kept a 6′ distance. Literally, out of the hundreds that were there, I maybe saw ten people with a mask on.
Anyway, it was a fun night that consisted of Outlaws (sprint cars) and late models. They ride around the track of dirt. I thought for sure we were going to be covered in dirt, but we weren’t.
It was loud. It kind of amazes me that they can make that much noise around the houses. However, the people who live there came AFTER the race track. I’m pretty sure they knew what they were getting into.
I am happy. This time last year, I wasn’t doing that great. I’m thankful I made it through last year to enjoy some small things. I hope it continues.
Thanks again for reading. I appreciate it and, as usual, I’m thinking of you and sending good juju your way♥️♥️
My husband and I decided to take a small road trip (1-1/2 hour drive) to Ocean City, New Jersey. I was jonesing for some beach food. Have you ever noticed that food tastes better when you’re at the beach?
We had pizza, french fries and a huge funnel cake. I wanted ice cream and cotton candy, but my husband didn’t want anything else and he couldn’t understand where I’m putting all the food. Over the last 2 months, my hunger has been insatiable. I’m wondering if I have a tapeworm😆. I figure I need to gain some weight in case I have to actually go on chemo.
We walked about 2-1/2 Miles. Wore me out, but I did it. Had to take some small breaks, but it was nice.
I absolutely love the smells of the beach, of the boardwalk. I wish there was a way I could bottle it. It’s a relaxing kind of smell.
Anyway, I’ve been feeling pretty darn good and I don’t want it to end. I do have some pain in my back, but I have a feeling it’s because after a year of basically no movement, I’m starting to walk again. (At least that’s what I’m hoping it is – I don’t want to think that the beast is in my back).
Thinking of ya’ll and sending good karma you’re way. Thank you for reading!
My husband has now been unemployed for over a year. We are burning through our 401K. I’m extremely worried. Also, he is extremely depressed. I need my carer to be a little happy as it would help me and my fight (sounds selfish, I know). I currently get Social Security and that’s enough to cover our mortgage, but not much else.
Although I am not religious, I have invoked the help of patron saints before (i.e. St. Anthony for lost items) and they have seemed to work. So, I’m trying again:
Pray dear saint for all those who are currently unemployed and seeking employment, especially (name person). Intercede for them now before the Lord and beg Him to not only provide for their immediate needs but to lead them to gainful employment so that they can be financially secure.
Please keep us in your thoughts (prayers, if you do that). I’ll keep you in mine. Thank you for reading!!